TELEMEDICINE TECHNOLOGIES IN DERMATOLOGY

Congenital epidermolysis bullosa (VBE) refers to orphan diseases. Face-to-face consultation is stressful for them, since moving in a car, in a wheelchair, dressing and undressing, removing bandages is very painful and difficult for the patient. There are not enough specialists with the appropriate level of competence in the settlements of Dagestan located far from the capital of the republic.
There is a threat of infection during a personal visit to a doctor in a pandemic of coronavirus infection. Teleconsultation removes all these problems.
The aim is to adapt telemedicine technologies to the remote format of verification of clinical diagnosis and dynamic observation of patients with VBE.
Materials and methods 93 patients with VBE were examined in a remote format. Both the doctor and the patient were consulted. Dynamic monitoring of some of them (eight people) was then carried out in a remote format using a mobile application for patients' smartphones.
Results and conclusion. With the help of telemedicine technologies, a detailed clinical diagnosis was verified in 98% of patients, and only one diagnosis was unspecified. Repeated online conversations were necessary in terms of clarifying the available information: concomitant diseases, clarifying the date of manifestation of the disease, the presence of sick relatives with a similar diagnosis. Face-to-face and remotely consulted patients (127 people) were included in the republican register of patients suffering from VBE. In most patients, multiple combined cases of organ and system complications were recorded - 614 cases in 127

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